Our New Name

We are changing our name to 'Spinal Muscular Atrophy Support UK’. We will continue with the same work, but will be transferring to our new name between now and the end of June 2014.  Our phone numbers remain the same. Our new website will be at www.smasupportuk.org.uk and we will have new emails, but the current website and emails will continue to connect you with us.

We remain proud of where we have come from and of the commitment of Anita Macaulay who started the Jennifer Trust 28 years ago after her daughter died of Spinal Muscular Atrophy Type 1. 

Why a name change?   Our Story

Information and Support

We offer free confidential information, emotional support, practical advice and guidance to anyone affected by Spinal Muscular Atrophy who is living in the UK. Our Outreach Workers can visit you if you are newly diagnosed. Our Peer Support Volunteers can share their personal experience and understanding of SMA with you. Professionals are welcome to contact us for information and support.

We do not provide a medical service or medical advice.
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Phone 01789 267520 Support Services

  • Research shows that approximately one in every 6,000 - 10,000 of the population are diagnosed with SMA

  • There are four types of SMA; Type 1, 2 and 3 appear in childhood and the fourth type affects adults and is known as Adult Onset SMA

  • If both parents carry a faulty copy of the gene, there is a 1 in 4 chance in each pregnancy that a baby will be born with SMA

  • Research shows that approxiamately one in every 40 - 60 of us carries the faulty gene that causes SMA

Research We fund and support the research community

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Latest News

Our Projects

Fundraising

Tori Elliott's SMAll Adventure!

 Tori Elliot

Find out more about Tori who is planning for her European road trip!

Click here >>

Daniel's Heroes

 In memory of Daniel Popham, his parents are organising a series of challenge events to help raise awareness and funds for:
 

The Jennifer Trust and Children's Hospice South West.
 

Follow the link below to find out more or to participate in one of their events.

Please help support the hard work that has gone into organising this event series...

Find out more >>

 

 

2014 Events!

Are you up for a challenge this year?


Visit our events pages to see how you could challenge yourself and support The Jennifer Trust's work... 

Martin Cake

Events >>> 

  

The Jeniffer Trust For Spinal Muscular Atrophy - Click here to return to the homepage
SMA
Mission Statement Latest May 2012

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