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Why a name change?   Our Story


Information and Support


We offer free confidential information, emotional support, practical advice and guidance to anyone affected by Spinal Muscular Atrophy who is living in the UK. Our Outreach Workers can visit you if you are newly diagnosed. Our Peer Support Volunteers can share their personal experience and understanding of SMA with you. Professionals are welcome to contact us for information and support.


We do not provide a medical service or medical advice.
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Phone 01789 267520 Support Services

  • Research shows that approximately one in every 6,000 - 10,000 of the population are diagnosed with SMA

  • There are four types of SMA; Type 1, 2 and 3 appear in childhood and the fourth type affects adults and is known as Adult Onset SMA

  • If both parents carry a faulty copy of the gene, there is a 1 in 4 chance in each pregnancy that a baby will be born with SMA

  • Research shows that approxiamately one in every 40 - 60 of us carries the faulty gene that causes SMA

Research We fund and support the research community

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Latest News

Our Projects

Fundraising

Tori Elliott's SMAll Adventure!

 Tori Elliot

Find out more about Tori who is planning for her European road trip!
 

Click here

Daniel's Heroes

 In memory of Daniel Popham, his parents are organising a series of challenge events to help raise awareness and funds for:
 

The Jennifer Trust and Children's Hospice South West.
 

Follow the link below to find out more or to participate in one of their events.

Please help support the hard work that has gone into organising this event series...

Find out more

 

Ramsay's Round


24 Munro Summits in 24 hours

Mark Hartree is taking on this incredible challenge on behalf of Molly who was diagnosed with SMA at 18 months.

Please show your support and help Mark reach his target! 

Mark's JustGiving Page

Information about Mark's challenge

The Jeniffer Trust For Spinal Muscular Atrophy - Click here to return to the homepage
SMA
Mission Statement Latest May 2012

Contact Us On Tel: 01789 267520
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