Notice Board

New Trustees Wanted

 

The Jennifer Trust is currently looking for new trustees to join our trustee board to provide governance and strategic direction to the charity and support the small office team based in Stratford upon Avon. Click below for more information:

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Middlesbrough Transporter Bridge Abseil - NEW DATE!

We have a new date for our Transporter Bridge Abseil! It will be on Sunday 24th June - put it in your diaries! Please invite everyone you know to take part, and let's make it a fantastic event!

Find out more

 

Public consultation on a UK rare disease plan launched on Rare Disease Day (UK) wide

 

 

Your chance to comment by 25th May 

 

 

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Fundraising

Volunteering-photoThere are lots of ways you can get involved with the Jennifer Trust from volunteering to throwing yourself out of a plane!

Help us provide 'help for today and hope for tomorrow' to all those affected by SMA

Find Out More

adrenaline eventsFor all those who are up for a challenge, we can offer you an exciting range of sponsored events throughout the year. A list of all our forthcoming events can be seen on our Fundraising Events page.

joseph squareRaise money in memory or in tribute to a loved one.

In the past, some families, friends and colleagues have told us that they would welcome the opportunity to continue supporting our cause in tribute to someone.

Anyone can donate or raise money for these funds now and help support the work of the Jennifer Trust.

An online sponsorship page with The Jennifer Trust is a safe way for friends and family across the UK (or even the world!) to sponsor you.

You can have your own personalised fundraising page that keeps a record of donations made. All money donated, including Gift Aid, make a real difference to people affected by SMA.

Set up your fundraising page now

The Jeniffer Trust For Spinal Muscular Atrophy - Click here to return to the homepage
SMA
Spinal muscular atrophy is a neuromuscular condition
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Information and Support

We offer free personalised information, emotional support, practical advice and guidance to anyone affected by Spinal Muscular Atrophy who is living in the UK. Our Outreach workers can visit you if you are newly diagnosed. Our volunteers organise social activities and can share their personal experience and understanding of SMA with you. We keep you up to date with and consultations of interest to the SMA community.

We do not provide a medical service or medical advice - this must come from your medical team.

Support Services
Personal information you share with us will be treated confidentially. Read our Privacy Notice to find out more.

Whilst we are unable to respond to individual enquiries from overseas, visitors are most welcome to make use of information on our website.
 

Route Maps for Spinal Muscular AtrophyRoute map reduced

 

 

Route Maps for SMA provide a summary overview of support services and resources available in the UK to families and individuals affected by SMA.
Route Map for Type 1 SMA available from 31st March 2012. Route Maps for Type 2 SMA, Type 3 SMA, Adult Onset SMA and SMA with Respiratory Distress (SMARD) are currently under development.

Contact Us On Tel: 01789 267520
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Email the JTSMA Office

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