Our New Name
We are changing our name to 'Spinal Muscular Atrophy Support UK’. We will continue with the same work, but will be transferring to our new name between now and the end of June 2014. Our phone numbers remain the same. Our new website will be at www.smasupportuk.org.uk and we will have new emails, but the current website and emails will continue to connect you with us.
We remain proud of where we have come from and of the commitment of Anita Macaulay who started the Jennifer Trust 28 years ago after her daughter died of Spinal Muscular Atrophy Type 1.
Information and Support
We offer free confidential information, emotional support, practical advice and guidance to anyone affected by Spinal Muscular Atrophy who is living in the UK. Our Outreach Workers can visit you if you are newly diagnosed. Our Peer Support Volunteers can share their personal experience and understanding of SMA with you. Professionals are welcome to contact us for information and support.
Find Out More Privacy Notice
Research shows that approximately one in every 6,000 - 10,000 of the population are diagnosed with SMA
There are four types of SMA; Type 1, 2 and 3 appear in childhood and the fourth type affects adults and is known as Adult Onset SMA
If both parents carry a faulty copy of the gene, there is a 1 in 4 chance in each pregnancy that a baby will be born with SMA
Research shows that approxiamately one in every 40 - 60 of us carries the faulty gene that causes SMA
Find out more about Tori who is planning for her European road trip!
In memory of Daniel Popham, his parents are organising a series of challenge events to help raise awareness and funds for:
The Jennifer Trust and Children's Hospice South West.
Follow the link below to find out more or to participate in one of their events.
Please help support the hard work that has gone into organising this event series...
Visit our events pages to see how you could challenge yourself and support The Jennifer Trust's work...