Young Peoples Contact Network

Toby Mildon The Jennifer Trust for Spinal Muscular Atrophy (JTSMA) offered this service as a result of concerns about the options available to young adults living with Spinal Muscular Atrophy (SMA). As children develop into adulthood, the services and resources previously available become greatly diminished, this happens at a time when young people have some very serious decisions to make concerning their own personal development. There is no reason why people with a disability should not live rewarding, challenging and productive lives, should not live independently and should not excel in their chosen profession.

The Jennifer Trust for Spinal; Muscular Atrophy has developed a service aimed directly at dealing with these issues. The most valuable resource we have to offer is PERSONAL EXPERIENCE, the opportunity to talk to someone who has been in the same or a similar situation can be of immense benefit, sometimes a bit of advice or just a friendly ear can make what seems impossible, possible.

This service is designed for 16 - 25 year olds living with SMA, this service is provided by a peer led resource of volunteers across the UK with direct experience of SMA. The volunteers cover a broad background of experience and provide an advice and support network, dealing with issues relating directly to young adults living with a disability. Further Education, Higher Education, Personal Assistants, Equipment, Housing, Employment, Benefits or simply general help and support - these are just some of the areas that the service covers.

Young Peoples Contact Network

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