The Jennifer Trust would be grateful if you could support a sponsored walk in memory of Georgia who passed away from Type 1 SMA in January 2008. The walk is taking place from Thursday 8th February until Sunday 11th February.
This is a photo of my beautiful Niece, Georgia, and below a video, who back in September was diagnosed with the medical condition, Spinal Muscular Atrophy Type 1, and, tragically, was given just 2 - 5 months to live.
After a very brave fight against this terrible condition, Georgia died on Sunday January 6th 2008, the night before her father's birthday, aged just 8 months. SMA Type 1 is a genetic disorder currently affecting around 100 babies a year. Most people have never heard of it, but it is the number one genetic killer of infants and toddlers.
I am planning to walk 52 miles over 3 days, together with Martin and several of Emma (my sister) and Nick's friends, to raise money and awareness for the Jennifer Trust. We plan to walk along the River Thames and the Kennet Canal finishing at Emma, Nick and Georgia's house near Newbury on the 9th of February 2008. Gav Thompson and Matt Whitticase are walking as Fat Men Walking, as indeed they are, and also Amy Tattersall. Please give generously, as it would mean so much to Emma and Nick. If any one fancies joining us, please do, the more the merrier as they say. In September I am planning on completeing a personal challenge by taking Georgia's spirit with me on an overseas trek to Peru raising awareness for the Jennifer Trust.
Please sponsor us now! Many thanks for your support and those of you with children, please give them a special hug tonight.
Karen and Martin XX
