SMA Europe
The Jennifer Trust is a member of SMA Europe, the umbrella coalition of SMA patient organisations in Europe. SMA Europe was set up in 2006 in order to facilitate dialogue between European patient organisations, and co-ordinate and pool research efforts and resources.
The SMA Europe representatives are affected by SMA or are parents of affected children, and have personal experience of its effects on patients and their families.
SMA Europe strives to combine resources in Europe in order to fund the best research in SMA worldwide. With the help of its Scientific Advisory Board, which includes some of the best international experts on neuromuscular diseases, SMA Europe succeeded in launching its first Call for Projects in 2008, resulting in five new research projects being undertaken internationally. This has continued on an annual basis.
SMA Europe member organisations are:
- Asociació Catalana de Enfermetats Neuromusculars (ASEM Catalunya) and Fundame - Spain
- Association Française contre les Myopathies (AFM) - France
- Deutsche Gesellschaft fuer Muskelkranke/Initiative SMA (DGM) - Germany
- Famiglie SMA - Italy
- The Jennifer Trust - UK
- The SMA Trust - UK
- Vereniging Spierziekten Nederland (VSN) - The Netherlands
