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Could you spare 20 minutes to help raise awareness and formulate policy for work in rare diseases? |
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Read about these groundbreaking SMA research results announced by Sheffield University. |
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The Jennifer Trust Conference 2009 provided an eager audience with much food for thought. We are really fortunate to have the support and interest of such engaging speakers, who can put over complex and sometimes challenging issues in an accessible way. Three of the key presenters have given permission for their presentations to be included on the website. |
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The 6th UK SMA Research Conference is to be held in Edinburgh on the 5th-6th October 2009. Details are now available. |
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SMA Europe announces its second call for research proposals. |
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Giacomo Comi and colleagues, at the University of Milan, Italy, have
shown improvements in the
survival and function of the motor neurons in a mouse model of SMA.
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| The first results of the Phase II CARNI-VAL trial have been published following the 12th Annual International SMA Research Group Meeting in Boston, USA. |
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5th UK SMA Researchers' Meeting |
5th Jul 2008 |
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The date and venue for the 5th UK SMA Researchers' meeting has now been announced.
For more information please see this page. |
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Applications are now being invited for research funding. |
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| The Jennifer Trust has joined forces with TREAT-NMD to create a comprehensive SMA Patient Registry in the UK. |
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