Introduction There is much research underway across many countries into the causes of Spinal Muscular Atrophy, the search for a cure and into medical and clinical management therapies that may improve quality of life for children and adults who have the condition. The Jennifer Trust for Spinal Muscular Atrophy funds much of the work in the United Kingdom. Research funding, monitoring and the dissemination of relevant research information is a key part of our 5 year strategic plan. See Also UK SMA Patient Database International Patients Registry International Alliance for Spinal Muscular Atrophy

Professor Dame Kay Davies,  Oxford Centre of Gene Function. Professor Francesco Muntoni, Professor of Paediatric Neurology, UCL Institute of Child Health, London

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