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I have been intending on writing my experience with 'Adult Onset' for a while now. When I read autumn's newsletter on hearing from adults with different forms of SMA I thought I would give it a try, so here goes...

I have been asked to write about my experience of adult onset SMA and have done so to hopefully reassure anybody newly diagnosed that they are not alone and that any worries they may have can be shared with and hopefully resolved through the Jennifer Trust Network.

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