Jennifer Trust for SMA e-campaign network
Campaigning for change using email and the Internet is a fast growing method of getting views across and influencing decision makers.
This Spring Jennifer Trust will be launching, along side other neuromuscular disorder organisations and self help groups, a campaign on a number of issues on which we would like to see change and improvement for those who live with neuromuscular disorders such as SMA.
These include improvements in NHS services for those with muscle disease, more research funding into the causes and treatments and ensuring that wheelchair provision and home adaptations are fully funded and available to all.
To help us with this important mission we need case histories. Can you help us? We need stories about problems you have faced in accessing NHS services and care and issues about the quality of care you or your child have received. It is only with your real life case histories can we hope to make a difference and get Government to change the way they deliver services.
If you can help by sending the occasional email to your MP or Government ministers, signing on-line petitions or putting your views across in internet forums please join the JTSMA e-campaign network. If you are not sure who your MP is email us and we will give you their contact details.
In return we will send you regular updates on progress towards significant change for people with neuromuscular conditions, and let you know immediately, and without the cost of printing and posting hundreds of letters, of any significant advances in research, standards of care or important announcements from the Government and other bodies.
To sign up to be a part of this network please follow this link to our Email Newsletter page and sign up for our Campaigning and Lobbying newlsetter. Or you can contact the Jennifer Trust for more information.
We won't inundate you with hundreds of emails, or pass your address on to any other organisation. We will simply send you a monthly update, plus special updates as and when significant events or announcements happen.
Your help can be very effective in bringing about change, just two or three emails from you, multiplied by the thousands of others across the country who support the campaign can work to educate, inform and influence those with the power to change the lives of people with spinal muscular atrophy.
I look forward to hearing from you. Help us make a difference!
Yours
Anita Macaulay
Chief Executive - Jennifer Trust for SMA
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