Jennifer Trust Fact Sheets |
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| Background information about SMA, what it is, types of SMA and how it is passed as a genetic condition. |
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| The effects, how it is diagnosed, equipment, toys, treatment, help, the future, more information. |
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| The effects, how it is diagnosed, treatment, other help, more information. |
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| The effects, management, mobility, the future, other help, more information. |
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| The effects, diagnosis, treatment, aids and equipment, employment, benefits, other help, more information. |
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| This fact sheet is designed to aid understanding of physiotherapy and to introduce the language used by physiotherapists and other professionals |
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Training and learning opportunities across the UK for professionals and voluntary groups. |
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Guide to PGD - what it is, how it is used, why it is used, limitations and the legal, ethical and research considerations. |
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| A guide to pre-natal CVS testing: what it is, what it is like, the risks involved and a personal perspective. |
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Standards of Care for SMA
Treat NMD - the neuromuscular network has published a series of very useful fact sheets which outline standards of care for SMA. They are very interested in talking with patients and clinicians about these recommendations and suggestions for their future improvement. If you're interested, please email the TREAT-NMD team at .
Follow the link to their site http://www.treat-nmd.eu/soc/eng/sma/ or contact the Jennifer Trust Support Services if you would like to receive paper copies of the fact sheets |
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Tel: +44 (0)1789 267 520 Fax: +44 (0)1789 268 371 Email:
Freephone helpline for families needing support and information: 0800 975 3100
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