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| Did you win a trip to New York? |
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| Stuck for that difficult to buy for person this Christmas? |
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| The follow up calendar to Executive Exposure is now available. And it's hot stuff! |
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| Of particular interest to the families who responded to Helen Baldwin's request for dedications, her book entitled The Jeffrey Journey has now been published. |
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| Read about the firewalk event held at this year's conference. |
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| Download the Memorandum and Articles of Association for a Charitable Company - for members approval at the AGM. |
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| Can you spare 15 minutes to take part in this on-line survey? |
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| Get your brochure now for our fantastic personalised company Christmas cards. |
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| Anita Macaulay, Chief Executive of the JTSMA, has been appointed as a new member of the Genetics and Insurance Committee (GAIC). |
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| The JTSMA has launched a Medical Information card and provided them to everybody with Type II, III or Adult Onset and will be sent out to new contacts. |
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| We are delighted to announce that there have been two recent important pieces of news regarding SMA research and the lead to a cure one day. The first announcement explains in detail about Project Cure SMA and the second brings news on drugs trials. |
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| A new website aimed at tackling companies and salespeople who cheat or mislead disabled customers has been launched. |
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| Lots of you will know (of) Tracey and Gareth Alexander, parents of Brionni (Type 1 SMA). Well, they're getting married and you can vote for them to get a dream wedding - come on...! |
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Journalism Opportunity |
20 Jun 2003 |
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| WORK EXPERIENCE - do you want to be a journalist? Did you know that Disability Now offers work experience to disabled journalism students or disabled people who can demonstrate previous journalism experience? If you want to join us for one or two weeks, please contact Dan Batten, tel: 020 7619 7323. |
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| Are you aged 16-25, with a mobility impairment and living Scotland? If so, please help with this survey. |
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| Volunteer families are wanted now to take part in this important research by Dr Anita Simonds and Michelle Chatwin at the Royal Brompton Hospital, London. |
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| Would you like to work during the summer as an au pair in Spain living with a family who have a little girl with SMA? |
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| Can you can help us provide comments on the government's proposed National Service Framework for 'The Ill Child'? |
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| A new information booklet is available to help Grandparents understand SMA. |
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Research Funding Applications |
10 Apr 2003 |
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| The JTSMA is now open for applications for Research funding to support innovative research in the diagnosis, care or treatment of patients with Spinal Muscular Atrophy. Application forms are available from the office |
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