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Link to Q&A sesssion fro the June 2002 FSMA conference. |
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| The Jennifer Trust is proud to announce that a donation of 250,000 Euros was given to the Aurora Drugs project in California working to find treatment which will cure Spinal Muscular Atrophy. |
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| We are delighted to share good news with you regarding a research breakthrough in Taiwan. This involves a chemical compound called Sodium Butyrate. Each piece of news brings us ever nearer answers to SMA. However we must always be realistic about what such information means |
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| Investigation of the effects of manual assist, cough in-exsuffiation device and non-invasive ventilation on cough efficacy in SMA and other neuromuscular disease in adults & children |
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| Oxford's Experience in the Use of Non Invasive Ventilation (NIV) in Children with Neuromuscular Diseases |
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| A link to the latest information regarding the potential use of sodium butyrate for treating spinal muscular atrophy. |
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| There is more good news in research into SMA. Scientists at the University of Pennsylvania have found evidence in cell cultures that 2 vitamins may lessen some of effects of SMA. These 2 vitamins are B12 and Folic Acid. |
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| Stem Cell transplantation article from Orest Hurko of the Muscular Dystrophy Campaign in Cambridge, UK |
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| Link to a page on BBC News online, which gives information about an exciting development by researchers working in the USA. |
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| To sum up the release - Scientists have produced a mouse, which has SMA, and then gone on to demonstrate that the SMA can be corrected by giving large amounts of the SMN2 protein. People who have SMA have only small quantities of the SMN2 protein. |
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