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| A guide to what you should expect from public services for your child. |
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| General Comfort, Clothes, Positioning, Sweating, Temperature Control, Movement, Seating, Getting Out and About, Special Pushchairs/Buggys, Car Transport, Bathing, Swimming, Comfort at Night. |
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| This leaflet explains about the pneumococcal vaccine, available from GPs, that can help protect against the causes of pneumonia. |
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| This fact sheet deals with pain management, detailing terminology, pain relief drugs, methods of application and other strategies. |
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| This Information Sheet deals with flu vaccinations. The flu vaccine is available for children as well as adults... |
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| Chest Physiotherapy is the removal of excess secretions (also called mucus, phlegm, sputum) from inside the lungs, by physical means... |
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| This fact sheet outlines several simple techniques, which can be used to reduce the risk of developing a severe respiratory infection. |
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| Gastrostomy is the name for the operation to place a feeding tube (or G-tube) into the stomach. |
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| Help to bridge the Jargon Gap |
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| Recommendations from the organisation Action for Sick Children for standards of care. |
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| After receiving a diagnosis of SMA, several professionals become involved. This information sheets outlines who they all are and what they do. |
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| The words that we use to describe the people and things around us work on a variety of levels. Words are used to not only describe, but also to quantify what we think. |
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| Constipation is very common in young children and even more so in young disabled children, because of their lack of mobility and underlying muscle weakness... |
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| BiPAP & CPAP machines have been available and in use for many years for night-time ventilation. This article explores their use in preventative management rather than as a treatment |
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| The provision of NHS funded EPIOCs (Electrically Powered Indoor/Outdoor Chairs) varies across the country. This article outlines what you should expect. |
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| Information provided by the Department of Health about the provision of powered wheelchairs, the responsibility of the NHS and the wheelchair voucher scheme. |
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Treat NMD - the neuromuscular network has published a series of very useful fact sheets which outline standards of care for SMA. They are very interested in talking with patients and clinicians about these recommendations and suggestions for their future improvement. If you're interested, please email the TREAT-NMD team at .
