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Discuss issues of education/inclusion, travel, and social attitudes. Also provision of services, wheelchairs, access. |
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71 |
232 |
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| Discuss here issues related to pre- or post-diagnosis of SMA. |
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17 |
58 |
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Questions related to the management of SMA symptoms for the more acute forms of SMA (generally Type I, II, SMARD1).
Discussions on feeding, bathing, car seats, immunisations, chest infections, spinal surgery. |
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49 |
214 |
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Questions related to the management of SMA symptoms for the milder forms of SMA (generally Type III, Adult Onset).
Discussions on diet, muscle strength, cramps, mobility. |
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25 |
75 |
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Issues related to pregancy: possibility, IVF/PGD, CVS and genetic councelling services. |
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23 |
91 |
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Getting in touch; the rarer forms of SMA; sharing experiences; just want to say something? |
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25 |
95 |
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Add an entry here if you have items for sale (or free of charge) that you want to advertise, or to ask for a service.
Please Note:The JTSMA bears no responsibility for the condition of items advertised by our members. We recommend that a qualified therapist assesses suitability of any seating equipment.
Adverts are removed after 3 months, but you may resubmit them if you wish. |
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4 comments |
| Wed Oct 22, 2008 7:05 pm |
| Vivien |
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Emma is 27 years old and has Type II SMA. In January 2007 Emma gave birth to a beautiful daughter. You can read about Emma's journey through pregnancy, birth and motherhood in our Autumn 2008 issue of Inspirations. Since having her baby, Emma has been asked many questions, so this blog is your opportunity to read those questions and answers and to ask any of your own. Emma aims to reply to as many of you as possible, so do please add your questions, comments or your own experiences here. |
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