Every year in the UK, around 100 new cases of SMA are diagnosed. In this section, families, friends and carers all share their personal memories, experiences, inspirational thoughts, and pictures of those they love, and that many have lost.
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A tribute to Sasha Barton, 15th July 2002 - 23rd April 2003, shared by her parents Giles and Tiziana. |
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| Tom Duffy from the US writes about his daughter Morgan, and how her strength of character inspires him. |
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| I am often asked to describe the experience of raising a child with a disability ... |
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| A follow up to Welcome to Holland |
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| Written by Beverley Stuive in memory of her son Josiah James Alexander Stuive who died soon after birth. |
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| Joe Lawley, the author of this poem, is the co-founder parent of The Compassionate Friends |
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| A reading from a book that tackles the subject of how to explain death to young children |
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| Tributes to Mike Squire, JTSMA Chairman, September 1997 until his death in December 1998. |
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| An interview with Mike Squire for the Coventry Evening Telegraph |
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| An article by Mike Squire in the MD Group Newsletter, Summer 1994. |
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| Dulcie Matthews wrote this poem about her granddaughter Emma. |
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| Written by Edward A. Guest, first published in the Fort Worth Star mid 1930s. |
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