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| My name is Jemma Collins and I am 16 years of age. I was diagnosed with SMA, type III at the age of 2½. I have never looked at myself as being 'disabled'. I always look at what I can do and not at what I can't. My Mum and Dad have always encouraged me to do things that people say I can't do. | ||
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| I have been asked to talk about type 3 life experiences, obviously an older person's experience. One of the many hurdles people, including myself, have to overcome when you have any type of SMA, is coming to terms with your diagnosis. With type 3 this sometimes doesn't happen until adulthood. | ||
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I have been intending on writing my experience with 'Adult Onset' for a while now. When I read autumn's newsletter on hearing from adults with different forms of SMA I thought I would give it a try, so here goes... | ||
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| I have been asked to write about my experience of adult onset SMA and have done so to hopefully reassure anybody newly diagnosed that they are not alone and that any worries they may have can be shared with and hopefully resolved through the Jennifer Trust Network. | ||
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Some great photos of the children's day out to Hatton Country World during the CVN training weekend. | ||
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Families of SMA announce novel drug program for SMA. | ||
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Repligen Corporation announces successful Phase I clinical trial of drug with potential to treat SMA. | ||
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Biomarker assay panel launched by The SMA Foundation and Myriad RBM. | ||
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NeuroNEXT announces new SMA biomarker study. | ||
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The BBC has published a short article on work from Thomas Gillingwater's laboratory (previously reported on by the Jennifer Trust). | ||
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