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Personal Stories Type 1

Our daughter, Abigail, was diagnosed with SMA Type I in November 1997, a few days before she was 4 months old. We already had a son, James, who was 2 years old at that time.
Our precious baby, Jessica Louise Coutts, was born on 23rd May 1997, but sadly, after bringing so much joy and happiness to us, and everyone who knew her she died ten and a half months later, on 12th April 1998.
Amar was born on November 26th 1995, a healthy boy with a full head of hair! Despite a few minor problems (they were minor compared with SMA) - a skin tag on his tongue and a couple of days in special care, we were overjoyed at his arrival, since he was our first, and as yet, only child, and we had waited for so long to have him.
Our little girl, Phoebe, was born on 13th March 1997, and sadly died at the age of eleven months, on 22nd February 1998 - just three weeks before her first birthday.
Our second daughter was born on 23rd October 1998, and we called her Joanna. It was her big sister Rhianna's second birthday the day after Joanna was born. We were thrilled to have two little girls and life was great.

When a child is born the first thing that the parents check for is that their new arrival has all his or her fingers and toes. We were no different...

Matthew was a most wanted, precious, beautiful baby with lovely big blue eyes, in fact I'm sure he most have thought his name was 'gorgeous' the amount of times I called him that...

I felt an overwhelming love for my little boy, he had a bit of a squiffy nose but he was the most beautiful thing I had ever seen (I'm biased though)..
On the 24th July 2007 Our Little "Angel" Nathan James Morrison was born. He was gorgeous with big blue eyes and a sparkling smile, he stole the hearts of many people...
Joanne Browne has shared her account of her treasured son Seán James Browne-Keating.
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