Every year in the UK, around 100 new cases of SMA are diagnosed. In this section, families, friends and carers all share their personal memories, experiences, inspirational thoughts, and pictures of those they love, and that many have lost.
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| Joanna's story about caring for her beautiful daughter Isabella, who has Type 1 SMA. |
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| Shirley Killick writes about her great grand-daughter Ellie who has been diagnosed with SMA Type II. |
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| Tributes to Helena Huxham read at the celebration of her life on 4th July 2004. |
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Roy Twycross shares his thoughts about his dear friend Emma. Emma had SMA Type II and is the inpsiration for Roy's fundraising for the JTSMA |
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| Normizah bt Isa from Singapore has kindly shared the story of her daughter Siti Hazwani and a picture of her son Zulhilmi b Sanusi. |
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| Read Christine Finlay's poem in tribute to her sister Sarah. |
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| Nikki wrote this poem some years ago when a new rose was named Precious Child and sold in aid of JTSMA. |
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| In memory of Alisha May Tansey, March 9th - October 1st 2001 |
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| Susan has kindly offered to share her poem about her 3 year old son Philip who has SMA Type 2. |
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| Read this amazing poem written by Helen Hearnshaw as a tribute to her children. |
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| A tribute to Sasha Barton, 15th July 2002 - 23rd April 2003, shared by her parents Giles and Tiziana. |
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| Tom Duffy from the US writes about his daughter Morgan, and how her strength of character inspires him. |
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| I am often asked to describe the experience of raising a child with a disability ... |
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| A follow up to Welcome to Holland |
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| Written by Beverley Stuive in memory of her son Josiah James Alexander Stuive who died soon after birth. |
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| Joe Lawley, the author of this poem, is the co-founder parent of The Compassionate Friends |
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| A reading from a book that tackles the subject of how to explain death to young children |
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| Tributes to Mike Squire, JTSMA Chairman, September 1997 until his death in December 1998. |
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| An interview with Mike Squire for the Coventry Evening Telegraph |
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| An article by Mike Squire in the MD Group Newsletter, Summer 1994. |
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