| Question |
Posted |
Author |
Replies |
Last Post |
|
Mon Feb 26, 2007 1:43 pm |
|
3 |
| Wed Mar 7, 2007 1:11 pm |
| marion physio |
|
| Who decides when my son should move from a frame to a wheelchair.He is struggling with his strenght with a frame and also falls with it, would it be so wrong for him to move to a chair now? |
 |
|
Fri Jan 26, 2007 1:54 pm |
|
1 |
| Sat Feb 10, 2007 3:05 pm |
| marion physio |
|
Hello - does anyone have the name for a company that specialises in slings for children with SMA.
Thanks |
|
|
Mon Oct 9, 2006 4:37 pm |
|
0 |
|
Does anyone have experience of the Emerson CoughAssist machine? Is it effective?
My wife has MS and a very weak cough. She keeps aspirating saliva, food etc and then gets aspiration pneumonia several timea a year and other repiratory problems. Any user experiences would be invaluable.
Brian |
|
|
Tue Sep 26, 2006 6:44 pm |
|
2 |
| Fri Nov 24, 2006 3:32 pm |
| ste |
|
hello i have most of the common problems related to
adult on-set sma iam only 42
and am still working part time
however i am having problems
with my employer . has thay have told me that if i can not keep up with the job i should go. has anyone else had these problems or could tell me what i should do |
|
|
Thu Jun 22, 2006 2:30 pm |
|
0 |
|
| my 5year old with sma type 2 very mild end, struggles with handwriting , think his hands get tired or is it to do with the tremors, is it normal? he holds his pencil with one hand but steadies it with the other on the top of the pencil? |
|
|
Sun Apr 17, 2005 8:28 pm |
|
1 |
| Wed Jul 13, 2005 1:57 pm |
| Chris at JTSMA |
|
| Hello everyone! I am a 52yr old female. I have severe arthritis also severe osteoporosis. Lately,I have experience terrible leg cramps and one constricture. I looked like a flamingo standing on one leg,and was unable to straighten my leg for several hours. This was very frightening and painful at the time. My lab work shows everything "normal". Is there special testing for SMA4? I will appreciate any help whatsoever. Sue |
|
|
Tue Mar 8, 2005 9:08 pm |
|
1 |
| Fri May 20, 2005 8:40 pm |
| Angel |
|
Has anyone experience of effective drugs, diet or treatment for hand tremors ?
I have tried a few beta blockers over the years but find they make me drowsey. |
|
|
Wed Apr 28, 2004 9:21 pm |
|
2 |
| Thu May 27, 2004 10:27 pm |
| Ken |
|
I have Adult SMA. The condition first appeared in June 2001 shortly before my 60th birthday, when I developed a slight limp in my left leg (though maybe earlier, see cramp below). The doctor thought it might be due to a trapped nerve in my back and referred me to a consultant neurosurgeon. Following various scans and tests, with the inevitable frustrating NHS delays; I was finally diagnosed with the condition in August last year.
I get the usual cramp in the legs, feet, and abdomen and now hands. I had this in my left leg and foot back in 1999 as well as severe coldness but following tests no specific cause was found, so that could have been the start of the SMA. A friend recommended a product called "Crampex", available from the local pharmacy, and that helps a lot. I showed them to my doctor, who told me they were a combination of vitamin B3 and calcium. They're apparently not available on the NHS, as they are classed as a food supplement, but nevertheless, I find them worth taking.
Is the severe coldness in the limbs a common problem?
I also saw an advert a short while ago for muscle toning equipment (I think it was slendertone, or something similar) and that got me thinking and exploring the Internet. The equipment is called an Electronic Muscle Stimulator (EMS) and is apparently used in sports medicine to aid recovery from disuse atrophy and other muscular problems. I think there are also some trials going on to aid limb movement in stroke recovery. The manufacturers adverts say they benefit all manner of conditions, but they would wouldn't they. Has anyone tried any of this type of equipment? If so has there been any beneficial effect? |
|
|
Sun Dec 28, 2003 2:35 pm |
|
5 |
| Sat Mar 26, 2005 11:35 am |
| Mary |
|
| My husband Kevin who is 62 has adult onset, One of his major problems is severe cramps, most particularly around the abdomen. He would like to know if everyone has this problem and how they tackle it. |
|
|
Sat Nov 29, 2003 6:07 am |
|
2 |
| Wed Nov 16, 2005 12:49 pm |
| Carmel |
|
| Hi everybody -- Does anybody know how effective mechanical chest physiotherapy machines are? I've never seen one, but I hear there is one well-known devise called (phonetic) "Vibromat". I've been using a electrically powered vibrator for some time now. It was I guess originally made for the slimming salons. The benefit of such a method is that it is available round the clock, every day and once purchased doesn't need outlay again. The effectiveness is a question, though. I'd appreciate hearing from you. Thanks! Bernie. |
|
