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cvs testing |
| we are now 12 weeks pregnant and had our cvs last thurseday the test went fine with no problems and our results are due in this friday.our youngest son was born last june with sma type1 and sadly died when he was 10 days old.my husband and myself had always said that if the test was to come back postive for sma that we would end the pregnancy but now that the date for the results is getting nearer im starting to have seconds thoughts on our descion and dont feel like i can tell my husband as he agrees strongly with the rest of the family as it was quite hard for our other three children to understand.i feel like im bonding with my baby which i tryed so hard not to do but as any pregnant mother no thats impossiable.i was just wondering what is the right decision. |
| Posted: Wed May 14, 2008 8:00 pm |
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Re: cvs testing |
| Only you and your husband can decide what is right for you, but I do sympathise with your dilema. Our second child died of Type 1 when she was 16 months old. I became pregnant again a few months after she died, fully in agreement with my husband that if the CVS came back showing SMA we would not proceed. Like you, by the time of the test I had grave doubts that I could go through with a termination. I think my husband felt the same, although we never really spoke about it. Despite my best efforts to ignore the pregnancy as much as possible and my avoidance of the screen at my scans, I found it impossible not to bond. Fortunately we did not have to make that decision as the baby was okay. I hope that you are as lucky. But your husband is right in that you must also consider your other children. I am sorry that your son died so young, and I am sure that it still affected your other children. But it may affect them more if this baby has SMA, but survives for longer. Our son (aged 3 at the time) had 16 months to get to know and love his sister. He was extremely close to her, and knew for the last 6 months of her life that she was going to die soon. He had 6 months of constant illnesses, hospital visits, disturbed nights and being shunted from one person to the next while our daughter got all the attention. It is two and a half years now since she died, and I would say he is still grieving/depressed. We have only just managed to get him a mental health referral after over a year of battling. I know there is someone else who has written on these pages who has proceeded with a second SMA pregnancy. Maybe they can give you another perspective if indeed it comes to that. Thinking of you tomorrow. |
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Re: Re: cvs testing |
| thank you janet for your post i really apperciate your support. well we got our results back a day earlyer than expected from shefield and there was no sign what so ever of the sma gene in the baby and im over joyed with relief. im really glad that i wasnt the only one that had mixed thoughts about ended the termanation and after reading ur post i did come to realise that to be fair that carrying on with the pregenancy would only be for my own benefit and not the baby nor the children. im really happy that you went on to have a healthy baby and we hope that all is well. we are due in november and we have just told the children and there really excited about having another baby.my eldest who is almost six asked me if this baby was going to the angels to play with max and that was very hard to hear from her but with a little bit of assurance shes really excited about becoming a big sister for the fourth time. many thanks again for your support and i will keep you posterd. leanne x |
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Re: cvs testing |
| I am so pleased to hear your news. Like your eldest, Alex's first question when we told him was 'when will the baby die?' And we worried that he would find it difficult to bond. But he seemed reassured when we said this baby was healthy, and he has adored his little brother since the day he was born (he is now 20 months). Good luck. |
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