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Current topic: Management - Acute Forms
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Current Question cough assist machine
i am due to have a baby with SMA type 1 in september and was wondering if a cough assist machine is suitable for type 1, also has anyone had any experience with using them for type 1?
Posted: Tue Jul 17, 2007 5:36 pm
  Author:
milly01
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Message Posted
It is very inportant to use a cough asst with Type 1s. They can not cough on their own.
Here is Elizabeth's page with her machines and explains why she needs them. Elizabeth has type 1 and will be 4 this month. Good luck and contact me with questions if you would like.
http://www.our-sma-angels.com/elizabeth/machines.htm
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Thu Sep 6, 2007 2:53 am
 
Lizzys Nana
 
thank you for your reply,i have had a look at the website and Elizabeth is a beauiful little girl and you all must be so proud of her. Toby was born on the 30th Aug and seems to be fine at the moment, we lost our last son Jake at 7 months old, last Nov. i don't want a huge amount of intervention but the cough assist seems to work well and it's not invasive but it has to prescribed. your story gives me hope to see Toby's 1st birthday at least and i wish Elizabeth a happy 4th birthday. take care kathryn X
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Thu Sep 6, 2007 10:34 am
 
milly01
 
Any help I can give you please contact me. I have The NIV Protocol on file and can send it to you. Plus several files on the care for Type 1s and lots of info to help if you contact me. My email is [Removed! - Webmaster's note: please don't add your e-mail to forum posting, use the 'edit my profile' link if you wish to let people e-mail you. If you add it as plain text, you are inviting spam robots that trawl web sites to harvest your e-mail address for spamming]
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Thu Sep 6, 2007 5:28 pm
 
Lizzys Nana
 
Please contact me through Elizabeth's web-site if you are interested in more info.
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Fri Sep 7, 2007 9:14 pm
 
Lizzys Nana
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