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Re: Tube versus bottle feeding type 1 babies |
| Our daughter, Amy, had an NG tube fitted at 9 months. We did stop bottle feeding (she was only taking 1 or 2 oz per feed by then), but continued giving her 'solids' for quite a few months after that. She could manage the thicker food much more easily and loved it! We were given a prescription for 'thickeners' to make liquids easier to swallow, but we never actually used them. Even after we stopped feeding her orally, we would still give her 'tastes' off a finger, usually her favourites - ice cream and chocolate! She lived to 16 months. |
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Re: Tube versus bottle feeding type 1 babies |
Hi there our daughter now 15 months has been NG fed from 5 months when she was admitted to hospitsl in a poor state - she has been back home since then. She always had a poor swallow though we were told by GP's it was tonsilitis etc etc!!!
Since all SMA 1 children are different then take expert advice and then follow your instincts (I personally would want the advice of more than the speech therapist). Whilst your baby can feed normally go for it but be aware of any going down the wrong way as with weak coughing the lungs are the main area of concern. |
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Re: Tube versus bottle feeding type 1 babies |
our son had an NG tube put in at 6 months, we continued to feed him as much as we could through a bottle but he really didn't take much, then fed the rest of the bottle through the ng tube. we also finger fed him solids before his bottle as this kind of kick started his swallow reflex.
have you spoken to a dietician? |
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Re: Tube versus bottle feeding type 1 babies |
Hi, I would agree with the last post, ie not worry too much about stopping feeding with a bottle/breast but concentrate of continuing with feeding 'solids' and when that becomes difficult then tastes of things are a great idea. My daughter Sophie had an NG tube from 11 months. I focused on all the positive things I could still do, and not on what she was losing. Perhaps also compensate with extra massage etc. Very best wishes.
Sue |
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Re: Re: Tube versus bottle feeding type 1 babies |
| I also forgot to mention - I wouldn't just take the advice of a speech therapist. I am quite interested to understand why they're involved anyway!! I'm sure there must be a good reason... |
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Re: Re: Re: Tube versus bottle feeding type 1 babies |
We were initially confused when we were first asked to see a speech therapist, but her job was not just related to speech but more oral development in general. She was an expert in swallowing technique and had good experience of a wide variety of feeding bottles, etc., so really it's just a slightly misleading job title!
On the subject of tube/bottle feeding, with Alisha we stuck with the tube once it was in there for the main feeding. We still tried to give her the bottle but not with much success; we gave her taste sensations though - we have a great picture of her with a lollipop! |
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| Wed Jul 25, 2007 10:22 am |
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