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	research into SMARD treatment and PGD
Does anyone have any information of numbers of people with childrfen with SMARD in the UK or of any research going on into its treatment. I have been told that PDG would be possible - technically but not possible because of the sample size needed for the license. Does anyone know if any of these issues are being addressed?
Posted: Wed Jun 21, 2006 7:14 pm

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Roz

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Re: research into SMARD treatment and PGD

i have a smard1 child who is almost 3. we have wanted to go the route of pgd in order to have another child. Our Neurologist contacted Chris Hubner in Germany and they said Pgd was not possible but that we could have a test at 8weeks and then again at 12weeks. As far as I know they are heading up the research into smard1 and are the most reliable in their infomation. We are in South Africa so unfortunately unable to give figures into the U.K. We seem to be the only ones in S.A.

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Mon Jul 17, 2006 4:40 pm

Mary

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Re: research into SMARD treatment and PGD

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