Reply Listing

Current topic: Social Issues
Current Question:
Current Question Dentists
I would like to hear off anyone with SMA, their experiences of visiting the dentist / accessing oral health services, good or bad, how well they cope with access, positioning comfort etc.
Posted: Wed Jul 13, 2005 2:13 pm
  Author:
Chris at JTSMA
Reply Post Reply

3 Replies

Message Posted
I recently took my daughter Katie (4) to her first full dentist checkup. He examined her teeth as Katie remained in her chair and we tilted her back slightly. The dentist identified at least two teeth with the beginnings of decay and he advised they needed filling. However he did not want to do them himself because he saw Katie as 'medically compromised'. He was primarily concerned about her inability to open her mouth wide enough but I am sure he had other concerns he didn't voice. He is referring us to the local community dentist for further advice but said we may have to go to one of the teaching hospitals in London. I am concerned that Katie is again going to have to go through lots of medical people poking and prodding her, that she will have to take a lot of time out of school and that in the end they may advise a general anaesthetic as the only way. Apparently all those medicines (lactulose, senokot, antibiotics) may be responsible for Katie's teeth problems although we always brush after medicine intake (unless it is midday). We also now have a battery powered toothbrush which Katie is not keen on but tolerates. Of all the problems Katie may have to encounter I had not thought bad teeth would be one of them!
Reply Post Reply
Sat Jul 23, 2005 8:12 am
 
Steph
My dentist has a surgery on two floors but was very happy to use the lower floor rooms for me. The chair is sometimes difficult to get on, especially if in the recline position but I am sure that would be adjusted if needed. I suppose it depends on how 'confident' people are around the disabled, if they are unsure about how to deal with you their response will not be positive and obstacles will be put in your way.
Reply Post Reply
Sun Sep 4, 2005 9:06 am
 
peterh
 
With regards to this matter I'm 20 and have type II SMA and i have a large hole in one of my bottom teeth at the back . It badly needs filled but my local hospital Dentist cannot give me an injection in the back of my gum to numb the area because I can't open my mouth wide enough.
The only other way it can be done is by general anasthetic but I think the risk is too large.
I am finding it hard to chew with this hole but i will just need to put up with the pain and toothache unless there is another way this procedure could be done.

any advice would be appreciated!

thanks
Reply Post Reply
 
 
 
 
 
 
 
Fri Sep 16, 2005 4:50 pm
 
RossT
Post a reply to this question
Back to list of questions
Back to list of topics
Register

See Also

Arrow Contact Us
Arrow How you can help
Arrow Sign up to e-mail Newsletters
Arrow Visit Our Shop
Arrow Inspirations
© JTSMA, Elta House, Birmingham Road, Stratford upon Avon, Warwickshire, CV37 0AQ, U.K.
Tel: +44 (0)1789 267 520    Fax: +44 (0)1789 268 371   Email:
Freephone helpline for families needing support and information: 0800 975 3100
Registered Charity No. 1106815
Company Limited by Guarantee Number 5137534 registered in England and Wales
Home
Info & Support
New Diagnosis
Fact Sheets
Contact Network
Discussion Forum
Support Events
Equipment
Members Area
Links
News/Press Office
Fundraising
Research
About Us
Log on/off
www.intergage.co.uk