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	seating advice needed
my son jake age 13 type 1/2 has just been told he is not a suitable candidate for spinal surgery.This is because his curve is too severe and he has been referred too late (surprise surprise)Bristol has suggested he is taken out of his present seating system (foam carve)lose the spinal brace as all its causing is pressure sores and gastrostimy irritation and be possible put more reclined in a matrix system.Our local DSC seem to prefer the way he is at the moment so im confused as to whos right and whose wrong.Has anybody else got any experience with supportive seating at this age bearing im mind his spine is struggling to hold him upright due to growth spurts.I live in Devon and the powers that be are learning mainly about sma from us so support is rather thin on the ground.Any help/previous experience with this problem much appreciated
Posted: Sun Mar 20, 2005 10:12 am

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tracy hughes

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Re: seating advice needed

Hi, I'm a teen with type 2. I experience alot of back pain (am waiting for surgery possibly) and just ordered a new wheelchair with custom seating made out of foam. The thing I like best about the seating is it holds me upright without much effort from me, so it doesn't tire me out hardly at all to sit up all day. I also got recline on my wheelchair, so that if I ever felt tired I could tilt back and get some weight and pressure off my back. Maybe something like this would help? Feel free to email, Good luck!

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Fri Sep 2, 2005 11:55 pm

Aisha

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