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Last Post |
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Mon Aug 11, 2008 10:35 pm |
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5 |
| Mon Aug 18, 2008 4:16 pm |
| paula |
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| My gorgeous baby daughter was born on January 3rd 2008. On May 28th 2008 my world fell apart when we learnt our baby Georgia had SMA type 1. Anyone out there please advise me on how to live day to day not knowing what is going to happen. I also have a 3 1/2 year old who is very demanding. Georgia has deteriorated over the last few months dramatically and i'm so scared. |
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Mon Aug 11, 2008 0:37 am |
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| I have sma II and am from philadelphia although i go to college in northern california. i am very interested in studying overseas and am trying to find more information about how i would do that. my college has an exchange program with oxford and i am wondering if anyone knows how accessible the school is. please respond here or email me at juliahf5@stanford.edu. thanks! |
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Tue Jul 29, 2008 11:55 pm |
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| We are currently looking to replace our 7 year old daughter's powerchair and are interested in anyone's experiences of the reliability of the various models on the market . She needs a hieght adjustable chair and standing would be an advantage. Response times for call out's is also important. Any thoughts would be helpful. |
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Fri Jul 4, 2008 10:59 am |
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4 |
| Wed Jul 23, 2008 2:44 pm |
| RossT |
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| Hello im jazmine, i was wondering if there was anyone who could chat to me about S.M.A abit More? |
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Sun Jun 15, 2008 0:15 am |
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2 |
| Thu Jul 17, 2008 7:46 pm |
| Lou |
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Well what can I say, we have just got back from the mobility show and I have to say .... WOW! That was the best thing we have done since our daughter was diagnosed - there is so much equipment out there and so many different designs that you have to see it to believe it!
Now the dilemma is which powered wheelchair do we go for?!? Personally we like the Snapdragon as it goes right down to the floor and we think it might be good for her to be able to get in and out herself? but the Hippo looks good too!
- has anybody got any experience with either of these machines? Any advice would be great. |
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Mon Jun 9, 2008 6:13 pm |
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| We've recently experienced a lot of problems with my daughter's powered chair, and are looking to raise the money to buy her a new chair. I was wondering if anyone has any other issues, good or bad, with any powered chair providers that we should consider before buying. Any help on the subject would be very much appreciated. |
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Fri Jun 6, 2008 1:37 pm |
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2 |
| Tue Jul 22, 2008 9:40 pm |
| JoJo |
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Can anybody help, My son Troy is a year old and has SMA type 2. we are currently on the waiting list for ocupational Therapy and are still about 8 weeks away, can anybody recommend a chair that can support him and he can eat and feel comfortable in. all i have at the momment is a bouncer chair that he is getting to big for. I live in the croydon area. many thanks
Jo |
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Fri May 16, 2008 10:49 am |
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2 |
| Fri Jun 20, 2008 11:06 pm |
| monica |
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Hi
I am a female with SMA type II and I am hoping to go over to Liverpool for the weekend soon, can anybody advise me on where I can hire a hoist for the weekend?
Thanks
Julianne |
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Fri May 9, 2008 11:43 pm |
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1 |
| Thu Jun 5, 2008 10:43 pm |
| Hania |
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| Has anyone recently gone through statementing and can give advice or tips? |
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Fri May 9, 2008 11:23 pm |
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1 |
| Sat May 10, 2008 5:24 pm |
| amys |
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We are in the process of looking at suitable cars to wheel the motorised wheelchair onto (via a ramp) and secure. Can anyone recommend a car (make/model)?
Also, is it best to change the car every 5 years with Motorbility or has anyone brought their own car and made the adjustments and kept the car?
I would appreciate any comments or ideas. |
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