| Question |
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Author |
Replies |
Last Post |
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Fri Sep 15, 2006 4:44 pm |
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4 |
| Wed Jun 20, 2007 4:24 pm |
| tracy hughes |
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Has anyone been able too get travel insurance including health that does cover you having SMA type 3?
I can get a policy but it excludes any illness that can be related to SMA e.g. chest infections.
Obviously I do not anticipate getting ill but I also have too be realistic (52 days of travel) but do I take the risk of travelling on a wing and a prayer hoping that I do not get sick with anything that is remotely linked to SMA...
This is a crazy and frustrating world we live in.
Any help appreciated. |
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Tue Sep 5, 2006 6:28 pm |
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6 |
| Tue Oct 24, 2006 6:55 pm |
| Carolinew |
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| I am in dispute with NHS re wheelchair provision for my son. They are refusing to supply a raise / lower facility, or a chair to which I could add one. They are advising that NHS does not have to provide as they are not responsible for vertical, only horizontal (!!) mobility. has anyone else had this issue. What have you had funded via NHS? My PCT will not provide a voucher. |
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Wed Jul 26, 2006 1:24 pm |
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0 |
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| Hi, the fsma website has an interesting idea for first day of school, sending a letter to the parents lightly explaining sma to help ease a child into mainstream school. Has anyone else done this, I am v conscious that my son will be the only child in a powered wheel-chair and want to nip some questions in the bud now, anyone any thoughts or suggestions? |
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Mon Jul 24, 2006 9:26 am |
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7 |
| Wed Apr 4, 2007 3:01 pm |
| Jean |
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| does anyone know where i can hire/buy a wheelchair that you can wheel straight into the sea? or any ideas how to make one? we live right by the sea and it would be brilliant for my 6 year old son |
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Mon Jul 10, 2006 10:53 am |
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0 |
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| has anyone experienced there child being laughed at when they are out, because they are in a wheelchair? how do you deal with it? |
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Tue Jun 27, 2006 10:05 am |
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1 |
| Sun Aug 20, 2006 12:11 pm |
| Toby |
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| Hello - I am mum to a little boy with sma II and would like to meet other families in our area (wokingham, berkshire) who have a child with sma ii of a similar age, my son will be 5 in September - I will leave my details with the JTSMA if anyone would like to arrange to meet up. Thanx |
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Fri May 26, 2006 11:35 am |
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1 |
| Sun Aug 20, 2006 12:08 pm |
| Toby |
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| My son enjoys his chair - a little too much and already its showing signs of wear and tear which made me realise insurance would be a good idea, what insurers are others using and what are the premiums typically. |
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Tue May 2, 2006 2:01 pm |
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2 |
| Mon Sep 17, 2007 1:11 pm |
| Sue Robbins |
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| i have a 12year old daughter who had spinal surgery 10months ago. how soon after has anyone lifted? we want to go to the conferance but dont really want to get a hoist. |
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Sun Apr 23, 2006 0:06 am |
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2 |
| Wed May 3, 2006 6:11 pm |
| Louise Lancey |
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| My 2 1/2 year old wants to get involved with playing in the garden with her older sister but is obviously unable to join in without adult help,we have no outdoor specialist equipment and our garden is large but on various levels.Has anyone any ideas for helping her interact safely outside - what does everyone else do with their tots out of doors? |
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Tue Feb 7, 2006 10:45 am |
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3 |
| Mon May 8, 2006 4:49 pm |
| Carolinew |
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Hi,
I'm mum to sam who is four and has SMA type II. He is currently waiting for his NHS powered wheelchair to be completed but I want to get him his own chair with "features" can anyone tell me which kind they have and the pro's and cons please.
Any advice would be welcome. |
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