100 percent
100%

Alfie Feilden

Donate
Target: £22000.00
Raised So Far: £26626.00
 
On March 11th we are running the Bath Half Marathon in aid of Alfie Feilden who is the son of our friend Rowan Feilden, and brother of Charlie, his twin. Incredibly sadly, Alfie has been diagnosed with SMA, an inherited neuromuscular condition that affects nerve cells in the spinal cord called anterior horn cells. SMA is a degenerative illness which causes messages from the brain which travel along the spinal cord to be distorted once they reach the anterior horn cells, and causes the muscles to waste away (atrophy) in those affected. The motor neurons affected in SMA are those which enable walking, crawling, arm and hand movement, head and neck movement and swallowing. The muscles used in breathing can also be affected. The brain and sensory nerves, which allow us to feel sensation such as temperature and touch, are not affected in SMA. Alfie's condition does not affect him mentally, and he is a tremendously bright, warm and loving little boy. However physically, it means Alfie suffers from reoccurring chest infections, restricted movement all over his body which continues to worsen, and general weakness. What we aim to do is raise money for an all-terrain wheelchair for Alfie, along with other equipment and treatment, which will massively increase his mobility, and will open up a whole new world to him which is currently inaccessible on his home on the farm in Wiltshire. There is no NHS or government funding available for this type of wheelchair, and his current wheel chair can only cope with flat terrain. However, the model we wish to get him will allow him to play with his peers, his brother Charlie, go for walks on the beach and through the fields, and make the rest of his life as enjoyable and inclusive as possible. For the most part, we are a fairly unfit group of individuals, and thirteen miles is probably more than most of us have ever ran in our lives, so any donation would be hugely appreciated. It is a cause very close to our hearts, and the wheel chair will make the world of difference to the remainder of Alfie's life. Thank you so much, -The Running for Alfie team
Image for Fund: Alfie Feilden
raised online:£24620.00
raised offline: £2006.00
total giftaid raised: £5116.25
 
Fran and Sal & line dancing Friends

Well done to all our friends who supported our event for Alfie. We hope that it will help the brave little fella in some wayeither now or in the future

Donated by Fran and Sal & line dancing Friends 19/May/2012

£1150.00
WRITHLINGTON 50+ CLUB

WE HOPE OUR DONATION WILL HELP ALFIE TOWARD'S HIS FUTURE NEED'S

Donated by WRITHLINGTON 50+ CLUB 18/May/2012

£350.00 + £87.50 Gift Aid
andy sadler

sorry its taken me so long to donate.... wish i had done it with you guys. What a fantastic effort, love to the boys!

Donated by andy sadler 20/Apr/2012

£10.00 + £2.50 Gift Aid
Sophie Gray

Well done all! Love Gray's sister x

Donated by Sophie Gray 15/Apr/2012

£10.00
Sam Harbord-Hamond

I am so sorry that this is so unbelievably late!? Well done to everyone, in particular the butts. Really very impressive!

Donated by Sam Harbord-Hamond 15/Apr/2012

£30.00 + £7.50 Gift Aid
Joy and Brian

Fantastic James and team - all the very best to little Alfie and his family

Donated by Joy and Brian 14/Apr/2012

£10.00
Richard and Michele Haynes

Wonderful effort James and co. Well done!

Donated by Richard and Michele Haynes 14/Apr/2012

£10.00
Julia Delamin

Well done Madley! x

Donated by Julia Delamin 04/Apr/2012

£20.00 + £5.00 Gift Aid
The Pettys

Very very well done Andrew! x

Donated by The Pettys 04/Apr/2012

£80.00 + £20.00 Gift Aid
James and Zannah Geake

To Alfie's future

Donated by James and Zannah Geake 02/Apr/2012

£70.00 + £17.50 Gift Aid
1
Logon and Update
Back to Listing
The Jeniffer Trust For Spinal Muscular Atrophy - Click here to return to the homepage
Mission Statement Latest May 2012

Contact Us On Tel: 01789 267520
We are happy to call you back
Email the JTSMA Office

© 2014 JTSMA | Privacy Policy and Cookies | Terms of Use

HomeInformation & Support | Fundraising | About Us | Donate | Contact Us | logon
help for today hope for tomorrow
FRSBfacebooktwitter
Registered Charity Number: 1106815
Company Limited By Guarantee Number: 5137534
Get Involved : Fundraising : Do your own thing : Community Fundraising Fund List : Alfie Feilden
click hee to visit the JTSMA online sohp
$TP_menu$
Powered By Intergage | www.intergage.co.uk