How we can support you
We offer the following services to anyone diagnosed with Spinal Muscular Atrophy (SMA), their family members or friends:
Information Sheets
These are grouped by Type of SMA and can be downloaded, or we can send you a copy
Emotional support, practical advice and guidance
Call us on 01789 267520, and ask for Support Services. Mon - Fri 09.00-16.30.
Altneratively, email us:
Outreach Home Visit
If you are newly diagnosed, one of our Outreach Workers can visit you.
Multisensory Toy Packs
Peer Support
Young People
We provide information and signpost you to organisations and groups that may be of interest.
Social Activities & Support Events
Arranged by us and other organisations, these provide opportunities for those affected by SMA to meet, to have fun and to learn from others.
Consultations
We are often approached by organisations keen to involve and hear the views of people in the SMA community.
Campaigns
We keep you up to date with many campaigns that are going on that you may wish to support.
E-Petitions
Publications
News Updates
We keep you informed via our website home page and regular communications.
