The Outreach Home Visiting Service
Three professionally qualified and experienced members of our Support Services Team visit newly diagnosed families at home to offer personalised support, information and guidance. They cover the whole of the UK and are available to answer your questions, help you understand SMA and to offer guidance following diagnosis.
They can talk with you about:
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The emotional impact of receiving this diagnosis
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The daily care and management of SMA
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Getting the best from professionals involved
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How to access services, adaptations and equipment
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What Benefits and Financial Support are available
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What has worked well for other families
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Accessing education
They can:
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Liaise with health and social care workers on your behalf
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Liaise with other organisations and authorities in providing appropriate services
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Link you in with our Peer Support Network and any social activities
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Listen, and support you in your choices and decision
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Facilitate on-going support of the family following bereavement
We do not provide a medical service or medical advice which must come from your medical team.
Contact us at or phone 01789 267520 and ask for Support Services
Frequently Asked Questions (FAQs)
The History of the Outreach Service
