The FSMA in the USA have announced a new research publication named "Compass" that you can read on-line here. From their e-mail:
Dear Friends:
We hope that you have enjoyed reading "Compass" a new research publication from Families of SMA.
The idea behind Compass is to provide additional research information in between editions of our
newsletter - Direction. The next edition of Direction should be mailed in September.
You can view the latest issue of Compass at http://www.fsma.org/pdf/FSMAResearchCompassSpr05.pdf
We also try to make sure that the most important information from Direction newsletter is posted
on the web site.
If you would like to receive printed versions of these publications, we ask you to join FSMA and
pay our annual dues in order to cover international mailing costs. See
http://www.fsma.org/joinfsma.shtml for membership information.
Thanks,
Families of SMA
(847) 367-7620
www.fsma.org