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JTSMA Membership Application (Word format) |
(37 Kb) |
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| Since becoming a company limited by guarantee, we have to use a new charity number and also re-register all our members. This is the Word version of the membership form. |
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JTSMA Membership Application (PDF) |
(38 Kb) |
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| Since becoming a company limited by guarantee, we have to use a new charity number and also re-register all our members. This is the PDF version of the membership form. |
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Conference 2006 Evaluation Form |
(30 Kb) |
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| Evaluation Form in PDF Format for the JTSMA 2006 Conference |
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Conference 2006 Evaluation Form |
(69 Kb) |
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| Evaluation Form in Word Format for the JTSMA 2006 Conference |
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Cot Death Questionaire, Word |
(25 Kb) |
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| Cot Death Questionaire in Word Format |
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Cot Death Questionaire, PDF |
(11 Kb) |
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| Cot Death Questionaire in PDF Format |
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Cough Machine Questionaire, Word |
(29 Kb) |
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| Cough Machine Questionaire in Microsoft Word Format |
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Cough Machine Questionaire, PDF |
(12 Kb) |
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| Cough Machine Questionaire in Portable Document Format |
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Letter to Type 1 Families, 5th Feb 2005, PDF |
(7 Kb) |
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| A letter to type 1 families announcing the probable start of UK drugs trials within the year. |
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Letter to Type 1 Families, 5th Feb 2005, Word |
(22 Kb) |
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| A letter to type 1 families announcing the probable start of UK drugs trials within the year. |
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Letter to Type 2 and Type 3 Families, 5th Feb 2005, PDF |
(7 Kb) |
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| A letter to type 2 and type 3 families announcing the probable start of UK drugs trials within the year. |
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Letter to Type 2 and Type 3 Families, 5th Feb 2005, Word |
(22 Kb) |
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| A letter to type 2 and type 3 families announcing the probable start of UK drugs trials within the year. |
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GAIC Concordat 4th March 2005 |
(140 Kb) |
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| John Reid, Minister of Health, announced on 14th March an extension to the current Moratorium on genetic testing information and results of such tests in relation to purchasing insurance products. This Concordat gives the details. |
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Range of Services |
(399 Kb) |
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| A PDF file containing details of the full range of services provided by the Jennifer Trust for Spinal Muscular Atrophy. |
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Northern Christmas Party (PDF) |
(65 Kb) |
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| Details and booking form for the Northern Christmas Party, 10th December 2005, Manchester. |
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Northern Ireland Christmas Party (PDF) |
(78 Kb) |
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| Details and booking form for the Northern Ireland Christmas Party, 3rd December 2005, Belfast. |
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Southern Christmas Party (PDF) |
(135 Kb) |
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| Details and booking form for the Southern Christmas Party, 4th December 2005, Gatwick. |
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Scottish Christmas Party (PDF) |
(278 Kb) |
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| Details and booking form for the Scottish Christmas Party, 4th December 2005, Perth. |
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Scottish Christmas Party (PDF) - light version |
(49 Kb) |
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Details and booking form for the Scottish Christmas Party, 4th December 2005, Perth.
This is the 'light# version with a smaller file size (no map) |
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Scottish Musical Evening (PDF) |
(148 Kb) |
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| Downloadable invitation and booking form for a Musical Evening, Rosebank Restaurant & Pub, Falkirk, Scotland on December 19th 2005. |
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Angel Service Invitation |
(8 Kb) |
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| Printable flyer and invitation for the 2005 Christmas Angel Service |
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Family Information Day: Holidays & Leisure (PDF) |
(10 Kb) |
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| Information about the Family Information Days on 12th and 21st November 2005. |
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Scottish Christmas Party Booking Form, Word |
(37 Kb) |
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| Scottish Christmas Party Booking Form, Word format |
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Southern Christmas Party Booking Form, Word |
(35 Kb) |
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| Southern Christmas Party Booking Form, Word Format |
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Northern Christmas Party Booking Form |
(33 Kb) |
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| Northern Christmas Party Booking Form, Word Format |
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Northern Christmas Party Booking Form, PDF |
(47 Kb) |
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| Northern Christmas Party Booking Form, PDF Format |
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Southern Christmas Party Booking Form, PDF |
(99 Kb) |
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| Southern Christmas Party Booking Form, PDF Format |
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Scottish Christmas Party Booking Form, PDF |
(44 Kb) |
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| Scottish Christmas Party Booking Form, PDF format. |
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Scottish Footie Fun Booking Form, Word |
(36 Kb) |
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| Scottish Footie Fun Booking Form, Word format |
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Scottish Footie Fun Booking Form, PDF |
(44 Kb) |
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| Scottish Footie Fun Booking Form, PDF format |
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Northern Ireland Xmas Booking Form, Word |
(31 Kb) |
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| Northern Ireland Xmas Booking Form, Word format |
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Northern Ireland Xmas Booking Form, PDF |
(46 Kb) |
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| Northern Ireland Xmas Booking Form, PDF format. |
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SMA management: from Standard of Care to Clinical Trials |
(647 Kb) |
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Francesco Muntoni's presentation slides from the JTSMA 2005 Conference cover the following points:
- Why it is important to have standards of care
- What we can do to have agreed standards of care in UK and the rest of Europe
- The UK-SMA consortium, funded by JT
- Clinical trials
- Which trials are on the horizon?
- What type of trials are there?
- Pros and cons in taking part to clinical trials
This document is in PDF format |
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Therapeutic Strategies for SMA |
(628 Kb) |
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Slides from Professor Kay Davies' presentation at the JTSMA 2005 Conference. The slides explore the SMA disease mechanism and possible strategies that might lead to therapies. (PDF Format) |
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Spinal Muscular Atrophy with Respiratory Distress |
(1883 Kb) |
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Volker Straub's slides from the presentation at the Jennifer Trust 2005 Conference.
The slides mark the progress of research into the genes that cause SMARD, effects of SMARD, comparison with Type 1 Spinal Muscular Atrophy. |
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Respiratory Care in SMA - An Update |
(1308 Kb) |
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Michelle Chatwin's presentation slides from the JTSMA 2005 Conference.
This document is in PDF format. |
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SMA Europe Meeting & Research Summary |
(480 Kb) |
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| A summary of the September 16th SMA Europe meeting, include a summary of French research. |
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