The Jennifer Trust AGM and Conference

Saturday 30th June - Sunday 1st July
Venue: Ettington Chase

The Jennifer Trust AGM and Conference

This year, why not join us at our AGM and conference for a weekend of fun, friendship, shared experiences, and learning?

The event will take place on 30^th June -1^st July at the Ettington Chase Conference Centre, in Ettington, near Stratford Upon Avon.

We have an exciting line up of internationally renowned speakers to inform and entertain you, as well as our traditional Saturday night party.

Conference Programme

Saturday 30th June 2007

10:00	Welcome and Introduction Richard Green CEO JTSMA
10:15	Natasha Wood Former BBC production manager and now writer / performer
10:45	Stem Cell Research Dr. Stephen Minger, King's College London
11:30-12:00	Coffee break
12:00	SMA Research update Professor Kay Davis and team, University of Oxford
12:45	AGM
13:15-14:30	Lunch

 14:30-17:30 Workshop Sessions

Room	Bronte 1	Bronte 2	Wordsworth
14:30- 15:05	Dr. Richard Finkel International SMA Parent Survey	Dr. Steven Minger Stem Cells Questions and Answers Session	Dr. Anna Mayhew Smart Net Project JTSMA
Relocate 10 minutes
15:15-15:50	Dr. Richard Finkel International SMA Parent Survey	Dr. Steven Minger Stem Cells Questions and Answers Session	Dr. Anna Mayhew Smart Net Project JTSMA
Relocate 10 minutes
16:00-16:35	Victoria Lundie Access to Communication and Technology	Julian Lee (The Aidis Trust) IT Accessibility	Alison Lashwood (Guys Hospital, London) Pre-implantation Genetic diagnosis
Relocate 10 minutes
16:45-17:20	Victoria Lundie Access to Communication and Technology	Julian Lee (The Aidis Trust) IT Accessibility	Alison Lashwood (Guys Hospital, London) Pre-implantation Genetic diagnosis
17:30 End

From 6.00pm onwards

SATURDAY EVENING ENTERTAINMENT

ONCE UPON A TIME IN THE WEST - (Midlands that is !)

Sunday 1st July 2007

11:45 - 12:50 Workshop Sessions

Time	Wordsworth	Games Room	Bronte
11:45 - 12:15	Whizz Kidz Laura Evison	Dogs for the Disabled Helen McCain	The Calvert Trust John Gillet
12:20 - 12:50	Whizz Kidz Laura Evison	Dogs for the Disabled Helen McCain	The Calvert Trust John Gillet

12:50 -14:00 Family Picnic

with Children's Entertainment in the Marquee

Conference Speakers

Our speakers this year include:

Dr Richard Finkel of the Children's Hospital Philadelphia is a leading and internationally respected specialist in the field of SMA management and research. Dr Finkel will present his work on the international SMA parent survey which you can read more about here.

Dr Steven Minger a leading Scientist in the field of Stem Cells is back by popular demand this year to give us an update on current developments in stem cell therapy. Last year he gave such a stimulating and interesting talk that we know you'll want to hear from Steven again.

Professor Kay Davis and her team at Oxford University will give us an annual update on the progress of their world leading SMA research.

Dr Anna Mayhew is the newly appointed physiotherapist coordinating the SMArt net project. This is an exciting new project set up by Professor Muntoni and Dr Mansur at the Hammersmith Hospital in London. The project is being part funded by the Jennifer Trust. 

Natasha Wood a 30 something writer, performer, ex BBC production manager and free spirit is currently performing in her own autobiographical one woman show 'Rolling With Laughter'. Following it's L.A. run, the show will continue on to London, the Edinburgh Fringe Festival and New York. In Spring 2008, the stage production will culminate in a one night fundraising event in London's West End for The Jennifer Trust. Natasha who has SMA type 2, takes time out of her busy schedule to come and share her showbiz experiences with us at conference.

John Gillet is a Trustee of the Calvert Trust and will be running two workshops on Sunday to tell us about their adventure holidays. "As one of the first organisations to consider access to the countryside and challenging activities specifically for disabled people, and now with over 20 years experience, the Calvert Trust has specially designed its latest centre on the edge of Exmoor in Devon to provide fun packed holidays for disabled people, their families and friends. It may be the first time you have tried climbing, sailing, canoeing, swimming, archery or horse riding but with the help and encouragement of our experienced and friendly instructors, you will have an exciting holiday to remember in one of the most beautiful parts of Britain. At the Calvert Trust it's what you can do that counts!"

Venue Information

Ettington Chase Conference Centre
Ettington
Warwickshire
CV37 7NZ

For more information about the venue, click here.
For a zoomable map, click here.

Programme and Registration

You can download the 2007 Conference Programme and Registration Form using the link below.

• Download Conference Programme and Registration Form

Print out the form, fill it in and post it back to us at the office address (shown on the form and at the bottom of this page). Don't hesitate to contact the office on 01789 267 520 if you would like any help with registration or have any other questions about the conference.

Further Information & Enquiries

For more information contact the JTSMA office on 01789 267 520.