My name is Tom Duffy, I live in Scranton Pa, USA. My daughter Morgan is type three. Her ability to walk is all but gone at this point, actually diminished greatly over the past week, which I find hard to believe. However, she is a true thespian, and has had lead roles at school plays, is a member of the band - she must be one of the only SMA children in the world who plays the clarinet(and well, might I add).
She was recently forced into a new student body and facility because of hp concerns (here, grade six moves on to new facility, but normally with student body). So, on to new school, knows not a sole, and is the only wheelchair bound student in the entire school. I lost my mind and fought to no avail. Second week of school she runs for and becomes elected to vice president of student council(school wide-all grades), two weeks after that she is elected president of the sixth grade. I am worring about her faultering academically because of the new environ and she floors me! What a kid, she inspires me.
If you wish or need to use her as an inspiration for parents in the UK feel free, as we are actively involved in FSMA here and I know the ropes, so to speak and up and coming families sometimes need that boost. They need to know life is not all that grim and these children can and do prosper.
Kindest Regards,
Tom Duffy, father to Morgan |
