Messages: 1-20 21-40 41-60 61-80 81-100 101-120 121-140 141-160 161-180 181+
Your messages about Anita Macaulay, founder of the JTSMA, following news of her death on 11th May 2006.
I personally never met Anita, but since her presence had such a positive impact in this SMA world of ours, she will be noticeably missed. You, her family, is why I am writing. It's never easy when a love one passes; I too have lost close family members and friends recently and if I had not had the support of strangers or unknown kin then I may have given up long ago. Please hang in there and continue on, our beloved ones would want us to.
Take care, Angie
We are so sad and shocked to hear the tragic news of Anita. She was such a special person to everyone,having known her for about 20 years was a privilege, one we will cherish forever in our hearts. Helping us to realise that we were not the only one to lose a child to type one SMA and introducing us to others, we made so many nice friends from the conferences. We thank her for our help in the healing of our grief. Please pass on our deepest sympathy to Stuart and all her family our thoughts are with you. "An angel herself, sent to us for a special purpose".
Steve and Brenda Jackson & family
Anita - We shared some very special memories when Stuart was a baby. We have watched him grow into the most wonderful, sensitive and confident young man because of your own honesty, love, sensitivity and sense of humour.
These qualities will live on in Stuart and be treasured by family and friends.
Christmas Eve will never be quite the same without your visit!
Special love to Stuart and all Anita's family, colleagues and friends
Andy, Joy and all the Tuffen family
I met Anita 21 years ago at the conference held at The Falcon, Stratford and immediately knew this was someone who understood and cared deeply for other parents who had a child with SMA. She had lost Jennifer yet gave so much to others with ongoing problems and imparted such courage to keep going and make the best of life.
It is a privilege to have known Anita her work will continue, she will never be forgotten. Our thoughts go out to Stuart and all Anita's family also the JTSMA team, her courage will live on.
From Hazel Bill & James Savage (SMA Type II)
I only met Anita once, but found her drive and dedication to support others inspirational. I thank Anita on behalf of my family for starting the Jennifer Trust, which has given us a great deal of support as a family.
To Anita's family,I send our deepest sympathy in the loss of your loved one. Though Anita is not here in body She will always be here in spirit.
God bless you Anita and thank you.
Pat & Tony Darby
I never met Anita but knew of her through a very pleasant young man I know called Dan Wakefield. Dan has SMA and is a very good friend of mine through our mutual support of Liverpool Football Club. I have helped Dan obtain tickets for Liverpool matches and he has always tipped me a few quid to help various charities I support. I asked him what charity he would like me to help on his behalf. No sooner said than done a cheque was winging it's way to the Jennifer Trust. I received in return a wonderful letter of thanks from Anita Macaulay.
I could tell from the letter what a remarkable person Anita was. I'm sure she will be very sadly missed by her family and her many friends. My condolences go out to them all.
Thank you.
Peter Etherington.
Such sad, dreadful news. My first contact with Anita was when I read a letter in a magazine which said 'Anybody heard of Werdnig Hoffman's Disease?' (which was what SMA 1 was then known as). Our daughter Emma had died in 1978 and until that moment I had only ever come across one other family. I was the second person to make contact with Anita (Heather was the first I think) and from that sprang the wonderful network that Anita created. I have always had total admiration for Anita's unceasing vision and energy and the way that the Jennifer Trust became such an amazing support, fund of knowledge, network, and campaigning and lobbying organisation. It was Anita's utter passion and determination which made that happen and has touched so many many lives. What a legacy.
A truly wonderful woman - and who will be so much missed. The gap for Stuart and for Anita's parents will be enormous - but her memory will always be honoured. My heart is full of thoughts for her family, her friends and for all of us touched by SMA - and by Anita herself.
With very much love
Jeanette and Eric Whitford
x
It was such a shock to hear about Anita, although we only met her once briefly we feel we have lost a friend. The Jennifer Trust was a great help offering comfort and support to us during Owen's short life and we send our condolences to her family and work colleagues, she will be greatly missed.
Pauline & Trevor Thomas
We are shocked and saddened by her sudden death. We will never forget the first time we met her with our son Ethan in 2001. Anita and the trust supported us through Ethan's illness and beyond giving us hope for the future. This years 10K run on July 2nd will be in memory of all of those Anita has helped and touched. Our thoughts and prayers are with all of her family and collegues.
Love
Robert and Caroline Booth x, Chelmsford, Essex.
We were both saddened to learn yesterday of Anita's death, and like everyone else it came as a great shock to us that it should have happened so suddenly to someone so full of life, energy and purpose.
Anita was the first person we spoke to after our daughter Sasha was given a diagnosis of SMA Type 1, and the first caring and compassionate voice we heard after weeks of emotionally remote doctors. We found her similarly empathetic and present when we took Sasha up to Stratford to meet her, and we will always be grateful for the help and support she gave us. Of course, the loss of her own child to SMA gave Anita a unique understanding and insight into the suffering of other families going through the same experience, and even though we only met her on two occasions, we saw that what made her so special in this regard was that she was unafraid of confronting her own or others' pain, even though it must have been very difficult to have to do this on a daily basis for so many years.
Despite the great loss of Anita's passing, we cannot help but feel that, just as we came to believe that our little Angel Sasha was only destined to be on earth for nine months, and yet touched and changed so many lives with her own, perhaps in a similar way Anita, having put so much energy and passion into setting up the Trust, had finally completed the work that she came here to do, and her soul simply decided that it was time to move on.
Despite the loss of it's founder member and driving force, we feel sure that the Jennifer Trust will continue the work Anita started with as much enthusiasm and commitment, and that doing so will ultimately be the best way of honouring her memory in the years to come.
Giles & Tiziana Barton
We were so sorry and shocked to hear about Anita. It is 20 years ago that we first met and she was a great friend and support to us when our son, Matthew, died of Type 1 SMA. Anita was a very special person and will be greatly missed by so many. Our sympathy and condolences to all involved with JTSMA but especially to her son, Stuart, and her parents and close friends.
Phil and Pauline Hinton
We were shocked to hear the tragic news of Anita's sudden death.
She will be greatly missed. A life has ended that has touched and helped so many many other lives.
We first met Anita shortly after the loss of our beloved baby son Christian to SMA type 1 at just 6 months old. Anita instantly became a rock to lean on and the font of all knowledge surrounding the then little known SMA.
The Angel fund in Christian's memory we thought was a brillant idea and really helped to focus the fundraising and making us feel part of the Jennifer Trust family.
We know that we are are but one case in thousands that Anita and the trust has helped through what was a most devastating period.
Our most heartfelt condolences and sympathy go to all of Anita's family, friends and work colleagues.
Sharon, Chris and Ema Darbyshire
Anita I cannot believe you are gone. I join the shocked multitude who have been lucky enough to know you. My thoughts and prayers are with your loved ones and all there in the UK who depended on you. The one thought that makes it a little easier to imagine you gone from us is that you are now with your dear Jennifer.
Anita I will miss your smile. Please know that you will never be forgotten. At every conference I attend in the future I will stop and have a drink to you Ms Macaulay.
Much love,
Sallie Capen
We first met Anita years ago at a local food company and only met her again in the past few years, on local parish council affairs. She was a dedicated and passionate advocate for local people and her infectious enthusiasm will be sorely missed. Our thoughts and prayers are with her family.
Robert and Alison Hancock
We were very saddeneed to learn of the sudden death of Anita, whom we know has worked so hard to help so many suffering people. We will remember her will and determination and think at this difficult time of those left behind.
From all here at Stratford Town Trust,with our sympathy.
Anita Applebee
We were so saddened and shocked to hear the news today. Anita's life has made such a difference to so many. Please accept our sympathy and our best wishes for all of those who were dear to her. I will always remember her with respect and admiration. We live in LA now and had a little email correspondence not so long ago. I'm so glad that we did. She had taken the Trust to a whole new level and I am sure her great work will continue, though she will be missed.
Terry Robinson
It has all been said.
Our thoughts are with Stuart and everyone who knew and cared about Anita.
Martin and Jane Burke and the girls
You gave us a life line and support to carry on "normally". Thank you for caring. Our sincerest condolences to Anita's family.
Katinka Grootenboer-Tromp, Netherlands.
We had the pleasure of meeting Anita when she travelled to Canada for the first time to visit Kenneth's Aunt Nessie, Uncle Bill, and cousins Tony and Kathryn.
We are deeply saddened by her sudden passing.
May she rest in peace.
Aunt Nessie, Tony and Kathryn Ballingers and families, Canada.
I was deeply shocked and saddened to hear of Anitas sudden death. Anita has been an inspiration to all of us affected by SMA.
Although I live in Sweden I have had the privilege of meeting Anita at conference several times and was always inspired by her dedication and strength in her work for SMA.
My thoughts go to her family, friends and colleagues.
Deepest sympathy from Kathleen Bengtsson-Hayward
President, The Swedish Ass. for persons with Neurological Disabilities (NHR)
Messages: 1-20 21-40 41-60 61-80 81-100 101-120 121-140 141-160 161-180 181+
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